6 years of SCD, 24 hookworms and 600 TTO later, I am happy to report a serious dearth of vomit and diarrhea in our household. And while Alex’s sleep isn’t stellar (he’s having trouble falling asleep 2 or 3 nights a week), this fall has been pretty damn wimpy, in comparison.
Overall Alex remains happy and calm. Academics are in a rut, but we have lost none of his new skills, which is good news. Negatives: finger picking is back and as bad as ever. And his teenage acne has also flared up badly. Neither seems to be responding anymore to the minocycline. I have an appointment with our doctor in 2 weeks – I think the time may have come to move on.
After several long talks with Marc and Jasper at Autoimmune Therapies, I was considering upping Alex’s family of hookworms. Seems to me that it is something to explore – see what happens with 10 or 20 more. However, as many of you know, the FDA told Jasper a week or two ago that he could no longer sell the worms in the U.S. A terrible shame, considering the positive effects this therapy has been having on so many with various immune-based diseases – my own children not the least of these. I’m not sure what I’ll be able to do, worm-wise, going forward. I may end up having to buy more TSO in the future, but where the money to do so is coming from, I don’t know.